Hey all, so this is something new.
As my pregnancy comes to the end I have had a few concerns which I wanted to share to possible meet other mums + dads who’s little ones have the same complications.
As I am writing this I am 37+5 weeks pregnant (13/06/18) and having a little boy, very exciting. We have his room ready, he owns more clothes than I do….. this is not fair, and I am ready for him to come now.
I want to chat to you all today about my journey, and the possibility that there is a possibility our little man has what is called posterior urethral valve – affects the bladder and kidneys (common in 8-10,000 baby boys).
Let me introduce you all to Craig and I 🙂 – we have been together for over 9 years now. Our little bubba was not planned and I found out I was 4 weeks pregnant in October 2017, he was a shock to the both of us, however we are so excited to start our little family and look forward to the new learning curve.
This post will be a little long but I have lots of information for those of you interested.
Here was our first scan where baby was exactly 12 weeks old 🙂 I was so glad I kept track of my periods to ensure everything was accurate. At this point nearly all of us on both sides of the family were pretty sure we were having a girl. Craig on the other hand was adamant we were having a little boy – he was right AGAIN 😛 .
At this point we were told we were at low risk of downs syndrome, baby was a good size and very healthy. He was that active that he kept shooting across the screen, the midwife couldn’t keep up.
Here our baby was 18+1 weeks old. We paid for a private scan to see our little ones gender and have a 4D sneaky peak. We are so glad we did this as we were disappointed with the photos from our 20 week scan, we were rushed and just sent away.
This scan was with Window to the womb in Exeter, they were fantastic. They spent their time on us, made sure we were happy, and kept scanning until we had plenty of photos that we were happy with. They also included a video of our scan as well as a teddy with bubba’s heart beat inside.
This photo/scan is my favourite, I mean look at his little nose, adorable. This was when we found out we were having a little boy. He was so active at this scan too and wanted us to see his little man parts before anything else haha.
After our 21 week scan we were told we would not be having another one which is normal. At this point everything to do with his bladder and kidneys were normal. As time went on our baby was beginning to measure on the large scale, and appeared to have quite a large growth spurt.
Around 30 weeks I saw a consultant about my heart rate – I used to have SVT which caused my heart to speed up at random times, I had an ablation in 2013 but since being pregnant I was getting palpitations more often, so I was referred to see a consultant. Anyway the appointment went well, however because he was measuring big still she referred me to have a growth scan just to double check it was him that was large.
So following my growth scan at 31+5 weeks the sonographer said the baby appeared to have an enlarged bladder, enlarged kidneys especially his left and that I need to see the consultant again.
We saw the same consultant I had met at 30 weeks the next day who asked for the gender to help with diagnosis, after she did a scan herself she came to a conclusion which was upsetting to me and my other half but gave us all scenarios. As his enlarged kidneys and bladder had not shown at our 20 week scan she was very hopeful that our little man could be treated fast.
(Baby shower cake)
So possible diagnosis is that our little boy could have what is called Posterior Urethral Valve which only happens to boys, after some internet research it can affect 8,000-10,000 baby boys.
So basically (holding back my medical jargon), bubba has a small bit of skin that may or may not have grown at the bottom of his bladder preventing him from passing urine (But as there was a lot of fluid around him, the consultant thinks he is passing urine whether it be small amounts or he is holding it in).
Even though the fluid around him is good her concern was that he must be retaining some urine as his bladder was enlarged as well as both kidneys, which means he is backing up.
There is no rush to induce him, his lungs looked perfect which showed the fluid is not backing up too far and getting into his respiratory system, he is swallowing the fluid around hi, and processing it well.
While he is still in me my placenta does most of the work for him therefor his kidneys won’t need to do so much work.
complications – treatment
When bubba is born he will have a few tests in the first 24 hours. These tests include an USS of his abdomen, blood tests and fluid monitoring of how much he passes. The consultant has reassured me that it will not be rushed, I can have a normal labour, skin to skin contact, breast feed and get plenty of cuddles. All I have to do is make sure he gets all these tests before we leave the hospital.
USS – If the Ultra sound scan shows that bubba has this flap of skin in his bladder we will be sent to Bristol straight away with him having a catheter inserted. In Bristol bubba will have to have a cystoscopy under general anaesthetic to burn away the skin – which should hopefully mean it is all over with and he won’t have any more issues, but just to have follow up appointments.
Blood tests –He will have a few sets of bloods taken to check that he is not in Renal failure ( kidney failure) due to his enlarged kidneys, this is the worst scenario. If he does have renal failure he won’t be able to have dialysis until he is 1, and may need a transplant when old enough. Obviously this freaked me out, however being a nurse I understood the complications.
Fluid monitoring –He will be on a strict fluid chart, because if he is passing urine we need to measure exactly how much. We have to monitor to make sure that his bladder has not gone into spasm due to being so enlarged. If his bladder is struggling he will need surgery at some point to take some of his stomach and make it into a bladder for him.
Throughout this whole process Craig has been amazing, so supportive. He is going to be the best dad. Being a nurse I should be supporting him and explaining information in more depth however I was the one who was an emotional wreck.
Obviously everything is a mystery until our little man is born.
If you would like to know my delivery story I will do an up date post, and I can then tell you all how everything went down.
We are both excited to meet our little boy and cannot wait to see who he looks like, get to see his personality and finally give him some cuddles.
Please comment below if you have been through this, want to know what happens, or have more suggestions for posts on my baby.