Category: Posterior Urethral valve

Introducing The Catheters Used For Our 4 Month Old.

So myself and another family have come together to raise awareness for Posterior Urethral Valve.  We have set up a Facebook Page  , not just for UK parents but for everyone in the UK wanting to educate themselves.
This condition is pretty rare, and before our son was diagnosed with it, myself and Craig had never heard of it.
I would like to set up some new posts about different treatments for our son Clayne.  Tips and tricks we have learnt, and more.

Today I wanted to share the two catheter options that were given to us when Clayne was 2 months old.  The selection is small.  In fact there is only two brands, which I am going to introduce you all to today.

Both caths

I have put the photos on a red background as with a white one it was difficult to show the clear catheter.
Here we have the two offered to us.  Obviously as Clayne gets older they will increase in width, and the selection will increase.
The two given to use to try were:
1. SpeediCath standard (Top green packaging).
2. WyCath H20 (Bottom clear packaging).

Each catheter is an intermittent catheter, therefor there is no balloon on the end to keep it in the bladder.  The idea of these are to insert them into Clayne’s bladder via his penis to drain off residual urine and then remove straight after.  Literally a 3 min process at most.  And the whole catheter does not go in, about 5 cm stays out.  We only insert enough until we see urine coming out the end of the green port.

Spedi cath

Lets discuss first, SpeediCath.
This catheter comes ready lubricated, this is specifically for boys.  In case you didn’t know Male and female catheters are different lengths, due to the urethra’s being different lengths.
This catheter has a urea based coated lubricant.  Reports from older children were that the coating stings a bit.  This made us a little hesitant.  Our little boy is already going to go through a lot he doesn’t need to feel stung every time we use it.
Anyway we tried this at home, we did found that Clayne did cry a little with this catheter.  We also found the lubricant dried out fast and we struggled to insert the catheter as it at first is too slippery to guide in with our hands.
Not our favourite.  Therefor we no longer use this one.

wy cath

Our favourite catheter we currently use is the WyCath water based lubricant catheter.
Clayne tolerates this one so much better.  Everything is in one.
My favourite part was that the packaging came apart and left a handle to guide the catheter in.
I am a nurse and I am very hygiene conscious and want to reduce urine infections as much as possible.  In a hospital setting this whole process on a patient is Sterile, so to completely go against that felt so unnatural to me.
We were told we do not need to use gloves as the catheterisation will take place in our home and Clayne would be used to the “BUGS” in our home.  Nooooo,  I still do not like the idea of not using gloves and touching the catheter (we do wash our hands every time before and after).
So to have the handle which is clean on the inside, makes me feel more comfortable.

water

Here is the packet completely separated.
Far left silver packet is the water lubricant.  All we do is pop the packet by pressing hard on the blue plastic button whilst the packet is unopened.  This then pours the water straight into the far right packet which has the catheter inside.
The middle section is the handle, which rips away.
And of course we have the catheter at the top.

Water based

At the top you can see the handle with the catheter inside.  We use this to guide the catheter.  This reduces the amount of hand contact to a bare minimum.  The tearing it away from the rest of the packet is the hardest, as you can see it is not a clean rip, but works anyway.
And again  the bottom packet would be filled with the lubricant to re dip if needed.
The white spot on the bottom packet is a sticker to make everything a little easier for us if out and about.

Craig and I plan to post about catheter insertion in the future, as our teaching was vague.  Plus with a 2 month old, it becomes very tricky.  Especially when they kick about and try to grab your hand. If there is anything else you would like to know then please comment below.  Or message us on our new page.

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My Sons Recent surgery number 2 (PUV)

Hey all welcome back to Clayne’s update for his condition Posterior Urethral Valve (PUV).
To catch up with Clayne’s story click these links :  Pregnant and baby boy may have PUV,   PUV confirmed

Clayne is now 10 weeks old as I am writing this.  He has come on leaps and bounds, he is now 59 cm long and weighs 14 lbs, my little chunky monkey.
He recently had his visit with a Nephrologist/paediatrician who said Clayne’s bloods (mainly his creatnine level for his kidneys) are improving but not as fast or as well as they would like however a recent ultrasound scan (USS) showed the outer layers of his kidneys were reducing in size but the inside has stayed enlarged.  This is still worrying but encouraging as well.  The same goes for his bladder.   Clayne has been doing very well still passing urine but was straining at times.
I also learnt that the antibiotic Trimethoprim used for urine infections that Clayne takes at night, will continue until he is potty trained.  Not that he minds I think it has become part of his bed time routine now.

On the 4th September we took a trip to Bristol for Clayne to have a cystoscopy (camera via his penis to look at his bladder and urethra), as well as a circumcision.  This is to reduce the chances of him getting a urine infection in the future when we start to catheterise intermittently.

37602543_1430111807090314_633795275760074752_n.jpg

The Cystoscopy showed that the valve had grown back a small amount, and was removed.  Due to no bleeding he did not need a catheter post surgery.  We were then informed his bladder is looking better but as he was one of the high risk children with PUV he will still need to be monitored and we need to learn to catheterise sooner rather than later.
The benefits of learning catheterisation now is that at at his current age he will grow to find this as a part of his life. Hopefully one day the aim is to wean the amount of times we catheterise so that he won’t need our help and will be able to empty his bladder fully.

We were not prepared to see how sore he would look post circumcision, poor little guy.  The care for this is easy.  Cream twice a day, however my son is a little fidget so nappy changes result in me scrunching up my face and making ouch noises as I don’t want to hurt him.
Being a nurse comes in handy with all these skills, meds and treatment.  But looking after my son is a whole new experience.  I worry so much and I am more involved and aware of what is happening compared to my other half who is learning parts of the anatomy and inner and outer workings of the kidneys and bladder in depth.

We have to go back to Bristol in December for another cystoscopy as the surgeon would like to look without having to remove valves, to be happy and sure they have stopped growing.