Tag: life blog

My Sons Recent surgery number 2 (PUV)

Hey all welcome back to Clayne’s update for his condition Posterior Urethral Valve (PUV).
To catch up with Clayne’s story click these links :  Pregnant and baby boy may have PUV,   PUV confirmed

Clayne is now 10 weeks old as I am writing this.  He has come on leaps and bounds, he is now 59 cm long and weighs 14 lbs, my little chunky monkey.
He recently had his visit with a Nephrologist/paediatrician who said Clayne’s bloods (mainly his creatnine level for his kidneys) are improving but not as fast or as well as they would like however a recent ultrasound scan (USS) showed the outer layers of his kidneys were reducing in size but the inside has stayed enlarged.  This is still worrying but encouraging as well.  The same goes for his bladder.   Clayne has been doing very well still passing urine but was straining at times.
I also learnt that the antibiotic Trimethoprim used for urine infections that Clayne takes at night, will continue until he is potty trained.  Not that he minds I think it has become part of his bed time routine now.

On the 4th September we took a trip to Bristol for Clayne to have a cystoscopy (camera via his penis to look at his bladder and urethra), as well as a circumcision.  This is to reduce the chances of him getting a urine infection in the future when we start to catheterise intermittently.

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The Cystoscopy showed that the valve had grown back a small amount, and was removed.  Due to no bleeding he did not need a catheter post surgery.  We were then informed his bladder is looking better but as he was one of the high risk children with PUV he will still need to be monitored and we need to learn to catheterise sooner rather than later.
The benefits of learning catheterisation now is that at at his current age he will grow to find this as a part of his life. Hopefully one day the aim is to wean the amount of times we catheterise so that he won’t need our help and will be able to empty his bladder fully.

We were not prepared to see how sore he would look post circumcision, poor little guy.  The care for this is easy.  Cream twice a day, however my son is a little fidget so nappy changes result in me scrunching up my face and making ouch noises as I don’t want to hurt him.
Being a nurse comes in handy with all these skills, meds and treatment.  But looking after my son is a whole new experience.  I worry so much and I am more involved and aware of what is happening compared to my other half who is learning parts of the anatomy and inner and outer workings of the kidneys and bladder in depth.

We have to go back to Bristol in December for another cystoscopy as the surgeon would like to look without having to remove valves, to be happy and sure they have stopped growing.

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10 Points About Being A New Mum

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Wanted to pop on here and share my experience as a first time mum, especially as the beginning was a rough ride.  We would not change any of the below points ( well maybe more sleep lol) but he makes all the hard work worthwhile.
Refer to my previous posts about my little boys condition.
My Baby pregnancy update – possible concerns – Posterior Urethral Valve???
My baby boy’s journey and diagnosis of Posterior urethral valve confirmed.

1-  You’re going to need LOTS of nappies

I was thinking, I have plenty of nappies a change after every feed about 2-3/3-4 hours will be fine.  I was WRONG, I change my son at least every 2 hours sometimes using 2 nappies depending if he decides to pee half way through a change, meaning I have to throw a nappy on top of him to prevent a human fountain drowning me and flooding the floor.  24 nappies over 24 hours is a good number to work off.

2- Be prepared to get covered in spit up, wee, poo.

I have been covered in it all.  On the second night home he projectile vomited all over me and the bed, at 3 am (Haha that was interesting to clean).
I have been on holiday with him feeding, he has then decided to poo and it has SQUEEZED out the sides of his nappies all down my outfit.  I had to walk out of the clubhouse to the caravan covered in poo in front of EVERYONE!
And the little fountains produced by my son are not so little, haha.  And be prepared for boys to get you when you least expect it.

3- Breast feeding isn’t always easier.

Breast feeding went well for 3 weeks until he wanted 5 oz from me all of a sudden as well as top ups.  I felt like a cow and could not keep up.  Formula had to be introduced otherwise I was going to cry.  I do still pump (when I can magic some time out of no where).

4- Who ever said nap when the baby naps needs to be realistic.

This pretty much sums things up.  There is no way I can nap when it is just me and my boy in the day.  He feeds every two hours but takes at least 30-40 mins to feed.  I then have washing, bottle cleaning to do between and then it is time to start all over again.

5- PJ’s become your best friend.

Amazing things pj’s.  I practically live in mine, hair tied up, no makeup and being comfy.  It is the way to go girls.

6- Trying to put your baby down once asleep is a mission.

Once my boy is asleep trying to lay him down is a tactical mission.  He waits until I lay in bed then he starts crying.  He is only soothed by being walked around the house, then round 2.

7- Using the bathroom becomes a operation.

I can’t shower without Craig being home just incase I am in the middle of washing my hair and he starts crying…… I am not trying to cuddle my son naked and covered in shampoo lol, slip hazard.
And going to the toilet alone,  nope.  Be prepared to never toilet alone again.

8- Ever heard a baby scream as well as cry?  Yep imagine that at 2 am when you’re fast asleep.

I know babies cry and he has an adorable cry but I did not expect my boy to scream.  He has a high pitch scream to start off his cry, always screams well in the night when I am in a deep sleep.  I jump out of bed like a ninja ready t take on anything, just to see his little face staring at me all innocent.

9- Your body will go back to normal.

My one fear was how is my body going to change……
Ladies down below does go back to normal, just don’t look for a couple days (too painful to look anyway), it is not worth the scare.
My stomach has gone flat however is a little saggy with stretch marks…… but easily fixed once I find time to work on my core.
Show off your Tiger stripes ladies.

10- HOT food pffftt whats that.

I swear my boy knows exactly when I am eating, just as I start, he cries …… Maybe one day I will taste some hot food nom nom.

 

Even though all of this I have put appears negative I would not change any of it for the world.  I love my boy so much, he has changed myself and Craig and made us better people.  Yes he is a big learning curve for us but when I look at his gorgeous face I fall in love.  He makes everything above so small compared to our love for him.

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